Objective: to understand the challenges faced by family caregivers of children and adolescents with Epidermolysis Bullosa in the search for assistance in the Health Care Network. Method: exploratory-descriptive study, with a qualitative approach, carried out in an outpatient clinic of a Unive...
Niño,
Adolescente,
Epidermólisis Ampollosa,
Cuidadores,
Familia,
Enfermedades Raras,
Salud Infantil,
Salud del Adolescente,
Servicios de Salud,
Servicios de Atención de Salud a Domicilio,
Enfermería
ABSTRACT During the Covid-19 pandemic, the issue is how to maintain adequate care for people with other diseases. In this document, the SBN Rare Diseases Committee (COMDORA) gives some guidelines on the care of patients with rare kidney diseases. These patients should follow the recommendations for the g...
Betacoronavirus,
Brasil,
COVID-19,
Infecciones por Coronavirus/diagnóstico,
Infecciones por Coronavirus/tratamiento farmacológico,
Infecciones por Coronavirus/epidemiología,
Interacciones Farmacológicas,
Enfermedades Renales/terapia,
Pandemias,
Aceptación de la Atención de Salud,
Neumonía Viral/diagnóstico,
Neumonía Viral/tratamiento farmacológico,
Neumonía Viral/epidemiología,
Enfermedades Raras/terapia,
SARS-CoV-2,
Evaluación de Síntomas
RESUMEN Introducción: en los últimos años Colombia reconoció las enfermedades huérfanas-raras como problema de interés en salud pública y ordenó su notificación obligatoria. Objetivo: describir la información sobre las enfermedades huérfanas-raras obtenida en Cali a través del SIVIGILA en...
The pancreatic neuroendocrine tumors (PanNETs) most commonly present as solid neoplasms; however, very rarely, they may present primarily as cystic neoplasms. Most of the cystic PanNETs are non-secreting tumors, and the radiological features are not well defined. Hence pre-operative diagnosis is usually ...
Giant cell myocarditis (GCM) is a rare and rapidly fatal cardiovascular condition most often seen in young adults. It is characterized microscopically by myocardial necrosis with multinucleated giant cells in the absence of well-defined granulomas. This disorder has typically been attributed to manifest ...
Bremm, João Matheus;
Cardoso-dos-Santos, Augusto César;
Magalhães, Vivyanne Santiago;
Medeiros-de-Souza, Ana Cláudia;
Alves, Ronaldo Fernandes Santos;
Araujo, Valdelaine Etelvina Miranda de;
Macario, Eduardo Marques;
Oliveira, Wanderson Kleber de;
Schüler-Faccini, Lavínia;
Sanseverino, Maria Teresa Vieira;
França, Giovanny Vinícius Araújo de.
Objetivo: Propor uma lista de anomalias congênitas com códigos correspondentes na Classificação Estatística Internacional de Doenças e Problemas Relacionados à Saúde - 10ᵃ Revisão (CID-10), visando a aplicação no âmbito da vigilância em saúde. Métodos: Em dezembro de 2019, realizou-...
Gigantomastia is a rare disease defined by an extreme and rapid enlargement of the breast, generally bilateral. The majority of cases are reported in pregnant women. Ninety-eight cases of gestational gigantomastia have been identified in electronic databases, and those with fatal outcomes comprised only ...
Report of two cases of gastric diverticulum (GD) documented by upper
gastrointestinal contrast radiographic studies and computed tomography
(CT)....
A síndrome de Lemierre caracteriza-se por uma rara entidade que gera tromboflebite da veia jugular interna e embolismo
séptico em história da infecção recente da orofaringe, além de
sinais radiológicos e isolamento de patógenos anaeróbicos, principalmente Fusobacterium necrophorum. Relatamos o...
Síndrome de Lemierre/complicaciones,
Enfermedades Raras/complicaciones,
Neoplasias Nasofaríngeas/virología,
Disección del Cuello,
Antibacterianos/uso terapéutico,
Ultrasonografía Doppler en Color,
Anticoagulantes/uso terapéutico,
Antivirales/uso terapéutico,
Tomografía Computarizada por Rayos X,
Síndrome de Lemierre/diagnóstico,
Sinovitis/diagnóstico por imagen,
Derrame Pleural/diagnóstico por imagen,
Cultivo de Sangre,
Diagnóstico Tardío,
Diagnóstico Diferencial,
Embolia Pulmonar/etiología,
Artritis Infecciosa/etiología,
Articulación de la Cadera/microbiología,
Klebsiella pneumoniae/aislamiento & purificación,
Artritis Infecciosa/diagnóstico por imagen,
Embolia Pulmonar/diagnóstico por imagen,
Síndrome de Lemierre/virología,
Síndrome de Lemierre/microbiología,
Herpesvirus Humano 4/aislamiento & purificación,
Síndrome de Lemierre/sangre
We report the case of a 37-year-old woman investigated for left flank pain 1 year after
bariatric surgery (Roux-en-Y gastric bypass). Abdominal computed tomography (CT)
revealed a solid intra-abdominal lesion measuring 9.3 × 9.4 × 10.4 cm, compressing
adjacent structures with no signs of invasion. Ileo...
